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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. The mission of FASD Hope is to bring awareness, information and inspiration to those whose lives have been touched by a Fetal Alcohol Spectrum Disorder. Each week, Podcast Host- Natalie Vecchione- will speak with a variety of guests about different topics related to FASD and other Brain Based Diagnoses.
Episodes
Tuesday Jul 12, 2022
139 - Run FASD 2022 - A Conversation with Team Run FASD
Tuesday Jul 12, 2022
Tuesday Jul 12, 2022
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
FASD Hope is THRILLED to be a part of Team Run FASD 2022 and this episode highlights the growth, exciting updates and important information of this 2nd Annual Virtual 5K for FASD! This episode features: Run FASD Coach- Rebecca Tillou, Jenn Wisdahl and Susan Elsworth. Listen to Rebecca, Jenn and Susan share how Run FASD has grown, their hopes in this one-of-a-kind Virtual 5K and hope in what Run FASD 2022 will do for the FASD community... and beyond!
This year's Run FASD 2022 Registration Options:
Option 1 - $35 - Full Registration - Medal, T-Shirt and Race Tag
Option 2 - $20 - T-Shirt
Option 3 - $15 - Race Medal
(Race Tags can also be purchased for $5)
EPISODE RESOURCES -
RUN FASD -https://runfasd.org/
Facebook - https://www.facebook.com/groups/489485015438968
Instagram - https://www.instagram.com/runfasd/
FASD United - https://fasdunited.org/
FASD HOPE RESOURCES -
FASD Hope - https://www.fasdhope.com/
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday Jul 05, 2022
Tuesday Jul 05, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Welcome to Season 3 of FASD Hope! FASD Hope is honored to welcome back FASD parent advocate, Lindsey Munns.
Lindsey Munns is a parent advocate for FASD. She attended the University of Utah, where she got her degree in Community Policy & Consumer Studies. She also studied education, is a TBRI practitioner, and is currently finishing up her FASCETS facilitator certification.
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday May 31, 2022
137 - Hope is Gritty - Season 2 Finale
Tuesday May 31, 2022
Tuesday May 31, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 137 is the Season 2 Finale, titled "Hope is Gritty" (Title Source - Jillana Goble). FASD Hope Co-Founder / Executive Producer / Host Natalie Vecchione shares her heart and what she has learned about hope in her journey as a mom of a young adult with an FASD.
"I wait for the LORD, my whole being waits, and in His word I put my hope."
- Psalm 130:5
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday May 24, 2022
136 - A Love-Stretched Life - Part 2 - A Conversation with Jillana Goble
Tuesday May 24, 2022
Tuesday May 24, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold’s a master’s degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She’s passionate about getting the faith community -as well as the community at large- to link arms with the state’s overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon.
In these hope-filled & uplifting episodes, Jillana discusses the following:
Part 1 - her family’s journey, founding “Every Child Oregon”, her hopes for her upcoming book "A Love-Stretched Life", what she has learned about FASD & how it’s impacted her family.
Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement.
"He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God." - Micah 6:8
EPISODE RESOURCES -
Jillana Goble -
https://jillana-goble.com/books/
Instagram - https://www.instagram.com/jillanagoble/?hl=en
Every Child Oregon -
https://everychildpdx.org/about-us/our-story/
Facebook - https://www.facebook.com/everychildoregon
Instagram - https://www.instagram.com/everychildoregon/?hl=en
LinkedIn - https://www.linkedin.com/company/every-child-oregon/
Twitter - https://www.twitter.com/EveryChildOR
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday May 24, 2022
135 - A Love-Stretched Life - Part 1 - A Conversation with Jillana Goble
Tuesday May 24, 2022
Tuesday May 24, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold’s a master’s degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She’s passionate about getting the faith community -as well as the community at large- to link arms with the state’s overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon.
In these hope-filled & uplifting episodes, Jillana discusses the following:
Part 1 - her family’s journey, founding “Every Child Oregon”, her hopes for "A Love-Stretched Life", what she has learned about FASD & how it’s impacted her family.
Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement.
"He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God." - Micah 6:8
EPISODE RESOURCES -
Jillana Goble -
https://jillana-goble.com/books/
Instagram - https://www.instagram.com/jillanagoble/?hl=en
Every Child Oregon -
https://everychildpdx.org/about-us/our-story/
Facebook - https://www.facebook.com/everychildoregon
Instagram - https://www.instagram.com/everychildoregon/?hl=en
LinkedIn - https://www.linkedin.com/company/every-child-oregon/
Twitter - https://www.twitter.com/EveryChildOR
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Saturday May 21, 2022
134 - Parent Caregiver Mental Health - A Conversation with Jess Ronne
Saturday May 21, 2022
Saturday May 21, 2022
May is Mental Health Awareness Month and Episode 134 shines a light on Jess Ronne! Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of Unseen, and caregiver advocate. She is founder and executive director of The Lucas Project—a non-profit dedicated to providing recognition and respite for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound special needs. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight. To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest book, Blended with Grit and Grace.
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday May 17, 2022
133 - The Reel Hope Project - A Conversation with Abby Marino
Tuesday May 17, 2022
Tuesday May 17, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and Episode 133 features The Reel Hope Project and Abby Marino, who is the Director of Operations and Outreach at this Minnesota nonprofit organization. "The Reel Hope Project focuses on creating recruitment profile videos for foster youth with no chance of reunification. We work with counties and adoption agencies to find foster kids their forever families. Each video we create highlighting a child’s story helps to solidify the reality that foster youth enter the child welfare system through no fault of their own." (Source - The Reel Project)
Abby Marino is the Director of Operations and Outreach at The Reel Hope Project, a Minnesota nonprofit organization creating recruitment profile videos for foster youth with no chance of reunification. With a heart for amplifying nonprofit narratives specific to vulnerable populations, Abby enjoys supporting the vision of foster care youth finding their forever families. She oversees operating procedures at The Reel Hope Project and appreciates the full circle of her role in coordinating shoot days with dedicated social workers and ultimately connecting prospective families to begin the adoption licensing process. Abby initiates big picture outreach and expansion opportunities, and works closely with each new state lead as the organization grows beyond the Midwest.
Episode 133 highlights the following: Abby's experience as a sibling of a young adult with FASD and her professional experience, the history and development of The Reel Hope Project, initiatives and upcoming events for The Reel Hope Project, how The Reel Hope Project has supported the foster care community and words of hope and encouragement.
"Test all things; hold fast what is good." - 1 Thessalonians 5:21
EPISODE RESOURCES -
The Reel Hope Project
https://www.thereelhopeproject.org/
Facebook - https://www.facebook.com/thereelhopeproject/
Instagram - https://www.instagram.com/reel_hope/
LinkedIn - https://www.linkedin.com/company/thereelhopeproject/
Twitter - https://twitter.com/reelhopeproject
Phone - 612-888-0494
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Saturday May 14, 2022
131 - Foster Hope NY - A Conversation with Hannah Bender
Saturday May 14, 2022
Saturday May 14, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
Episode 131 features Hannah Bender of Foster Hope NY, which is Foster Care Support Ministry based in Syracuse, NY. Foster Hope's Mission is to "ignite the hearts of their communities, businesses and churches to advocate for & meet the needs of children and families in foster care."
Foster Hope NY provides monthly support groups, community events, business impact partners and a foster closet. Hannah shares the resources provided by Foster Hope NY, how it's grown in the past year and upcoming events.
"Pure and defiled religion before God and the Father is this: to visit orphans and widows in their trouble, and to keep oneself unspotted from the world." - James 1:27
EPISODE RESOURCES -
Foster Hope NY
hannah@fosterhopeny.org
Instagram - https://www.instagram.com/fosterhopeny/
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Wednesday May 11, 2022
132 - Silent No More - A Conversation with Miranda B.
Wednesday May 11, 2022
Wednesday May 11, 2022
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is Foster Care Awareness Month and the voices of those individuals who have been in Foster Care are so CRITICAL in our community. Episode 132 features Miranda B., an adult FASD self-advocate, who was also a youth in Foster Care in British Columbia, Canada. Miranda's journey and story is EXTREMELY important in the conversation of Foster Care Awareness and Support. Miranda is now an adult living in British Columbia and she is a photographer and runs an online support group for adults with FASD. Through her online support group, she hopes to provide support and encouragement for other adults with FASD. Her goal is to educate and provide awareness of FASD and speaking out about the injustices that face so many youths in Foster Care.
EPISODE RESOURCES -
Miranda B. -
Miranda on Facebook - https://www.facebook.com/MandyGraffmations
Miranda on Instagram -
https://www.instagram.com/mggraff22
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday May 03, 2022
130 - Digging Deeper in FASD - A Conversation with Ann Yurcek
Tuesday May 03, 2022
Tuesday May 03, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
May is National Foster Care Month, a time to acknowledge and support children, youth, families and professionals in the foster care system. FASD Hope is honored to have Ann Yurcek of Red Shoes Rock and Digging Deeper as the guest of Episode 130.
Ann Yurcek is a writer, mentor, speaker, and advocate for professional, caregivers and individuals in the exceptional needs communities. She is a strong advocate for children with special needs in the foster care and adoption system. Ann and her husband Jim are the loving parents of twelve children, seven of twelve children have special needs. Their daughter, Becca, taught them how to make a difference for Mac, child number twelve. Mac is a medical marvel and Furry: The Little Penguin That Could is written in the hope of supporting inclusion for children living with trauma, physical, emotional and intellectual challenges and features them both "Rocking Their Red Shoes".
Ann is the founder and prior administrator of Parenting FASD Kids and Parenting Children with FASD Digging Deeper Support Groups for caregivers and parents living with children who have brain and body challenges due to prenatal alcohol exposure. She shares and enlightens parents and caregivers with her incredible journey at her website - www.ParentingComplexChildren.com and she co-directs the International Red Shoes Rock Stop FASD campaign.
In 2006, Ann authored the Dove and Mom's Choice Gold Award Winning Memoir, "Tiny Titan: Journey of Hope". Her new children's books, "Furry: The Little Penguin That Could" and "Furry: The Little Penguin Who Cares". Ann believes if we embrace diversity in Kindergarten, we have the opportunity to lessen bullying and build understanding and acceptance for everyone and the concept of Emotional Support Partners for kids. Everyone matters!
In this heartfelt and inspirational conversation, Ann discusses: their family's journey, their family's FASD and Foster Care journeys, her decades-long legacy in the FASD community, the over 428+ comorbid medical conditions associated with FASD, her books, her strong faith and her words of encouragement and hope.
"Those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Isaiah 40:31
EPISODE RESOURCES -
Red Shoes Rock - https://redshoesrock.com/
Furry The Penguin- https://furrythepenguin.com/
Facebook - https://www.facebook.com/RedShoesRock
https://www.facebook.com/parentingcomplexchildren
Instagram - https://www.instagram.com/redshoesrock_fasdaware/?hl=en
Etsy Store -
https://www.etsy.com/shop/MacFurryRockRedShoes?ref=shop_sugg
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!