FASD Hope
136 - A Love-Stretched Life - Part 2 - A Conversation with Jillana Goble

136 - A Love-Stretched Life - Part 2 - A Conversation with Jillana Goble

May 24, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold’s a master’s degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She’s passionate about getting the faith community -as well as the community at large- to link arms with the state’s overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon.

In these hope-filled & uplifting episodes, Jillana discusses the following:

Part 1 - her family’s journey, founding “Every Child Oregon”, her hopes for her upcoming book "A Love-Stretched Life", what she has learned about FASD & how it’s impacted her family.

Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement.

"He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God."  - Micah 6:8

 

EPISODE RESOURCES -

Jillana Goble -

https://jillana-goble.com/

https://jillana-goble.com/books/

Instagram - https://www.instagram.com/jillanagoble/?hl=en

 

Every Child Oregon -

https://everychildpdx.org/about-us/our-story/

Facebook - https://www.facebook.com/everychildoregon

Instagram - https://www.instagram.com/everychildoregon/?hl=en

LinkedIn - https://www.linkedin.com/company/every-child-oregon/

Twitter - https://www.twitter.com/EveryChildOR

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

135 - A Love-Stretched Life - Part 1 - A Conversation with Jillana Goble

135 - A Love-Stretched Life - Part 1 - A Conversation with Jillana Goble

May 24, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

May is Foster Care Awareness Month and Episodes 135 & 136 feature Jillana Goble, author of “A Love-Stretched Life”. Jillana Goble is a speaker, author, and advocate. She hold’s a master’s degree in teaching. Together with her husband, Luke, she parents five children ranging in age from preteen to young adult. She’s passionate about getting the faith community -as well as the community at large- to link arms with the state’s overburdened child welfare system to uplift vulnerable children in foster care and those who serve them. Jillana is the founder of Every Child Oregon.

In these hope-filled & uplifting episodes, Jillana discusses the following:

Part 1 - her family’s journey, founding “Every Child Oregon”, her hopes for "A Love-Stretched Life", what she has learned about FASD & how it’s impacted her family.

Part 2 - Diving into her new book “A Love-Stretched Life”, her faith, FASD, how to get her upcoming book & her words of hope & encouragement.

 

"He has shown you, O man, what is good; And what does the LORD require of you But to do justly, To love mercy, And to walk humbly with your God."  - Micah 6:8

 

EPISODE RESOURCES -

Jillana Goble -

https://jillana-goble.com/

https://jillana-goble.com/books/

Instagram - https://www.instagram.com/jillanagoble/?hl=en

 

Every Child Oregon -

https://everychildpdx.org/about-us/our-story/

Facebook - https://www.facebook.com/everychildoregon

Instagram - https://www.instagram.com/everychildoregon/?hl=en

LinkedIn - https://www.linkedin.com/company/every-child-oregon/

Twitter - https://www.twitter.com/EveryChildOR

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

 

134 - Parent Caregiver Mental Health - A Conversation with Jess Ronne

134 - Parent Caregiver Mental Health - A Conversation with Jess Ronne

May 21, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.
 
BONUS MENTAL HEALTH MONTH EPISODE!
 

May is Mental Health Awareness Month and Episode 134 shines a light on Jess Ronne! Jess Ronne is an author, speaker, podcast host at Coffee with Caregivers, associate producer of Unseen, and caregiver advocate.  She is founder and executive director of The Lucas Project—a non-profit dedicated to providing recognition and respite for special needs families. She and her husband Ryan live in Michigan with their 8 children, including their son Lucas who has profound special needs. Her story of beauty from ashes has been shared on The Today Show, Daily Mail and Huffington Post and is detailed in her memoir Sunlight Burning at Midnight.  To follow the ongoing saga she can be found at www.jessplusthemess.com or purchase her latest book, Blended with Grit and Grace. 

 
In this critically important episode, which airs in conjunction with the release of "Unseen: Caregiver Documentary", Jess shares the following: her parenting / family's journey, their family's challenges, becoming a ROCK STAR advocate for the Parent Caregiver Community, the importance of caregiver mental health, her many initiatives (including the new Unseen Caregiver Documentary", her faith in her journey, key facts about parent caregivers and her words of hope and encouragement.
 
EPISODE RESOURCES - 
Jess Ronne
 
 
The Unseen Caregiver Documentary, which features The Ronne family, is to view online from May 20-26th, 2022.
For more information or to purchase a ticket -
 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

133 - The Reel Hope Project - A Conversation with Abby Marino

133 - The Reel Hope Project - A Conversation with Abby Marino

May 17, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

May is Foster Care Awareness Month and Episode 133 features The Reel Hope Project and Abby Marino, who is the Director of Operations and Outreach at this Minnesota nonprofit organization. "The Reel Hope Project focuses on creating recruitment profile videos for foster youth with no chance of reunification.  We work with counties and adoption agencies to find foster kids their forever families. Each video we create highlighting a child’s story helps to solidify the reality that foster youth enter the child welfare system through no fault of their own." (Source - The Reel Project)

Abby Marino is the Director of Operations and Outreach at The Reel Hope Project, a Minnesota nonprofit organization creating recruitment profile videos for foster youth with no chance of reunification. With a heart for amplifying nonprofit narratives specific to vulnerable populations, Abby enjoys supporting the vision of foster care youth finding their forever families. She oversees operating procedures at The Reel Hope Project and appreciates the full circle of her role in coordinating shoot days with dedicated social workers and ultimately connecting prospective families to begin the adoption licensing process. Abby initiates big picture outreach and expansion opportunities, and works closely with each new state lead as the organization grows beyond the Midwest.

Episode 133 highlights the following: Abby's experience as a sibling of a young adult with FASD and her professional experience, the history and development of The Reel Hope Project, initiatives and upcoming events for The Reel Hope Project, how The Reel Hope Project has supported the foster care community and words of hope and encouragement.

 

"Test all things; hold fast what is good." - 1 Thessalonians 5:21

 

EPISODE RESOURCES - 

The Reel Hope Project

https://www.thereelhopeproject.org/

info@thereelhopeproject.org

Facebook - https://www.facebook.com/thereelhopeproject/

Instagram - https://www.instagram.com/reel_hope/

LinkedIn - https://www.linkedin.com/company/thereelhopeproject/

Twitter - https://twitter.com/reelhopeproject

Phone - 612-888-0494

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

131 - Foster Hope NY - A Conversation with Hannah Bender

131 - Foster Hope NY - A Conversation with Hannah Bender

May 14, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 131 features Hannah Bender of Foster Hope NY, which is Foster Care Support Ministry based in Syracuse, NY.  Foster Hope's Mission is to "ignite the hearts of their communities, businesses and churches to advocate for & meet the needs of children and families in foster care."

Foster Hope NY provides monthly support groups, community events, business impact partners and a foster closet.  Hannah shares the resources provided by Foster Hope NY, how it's grown in the past year and upcoming events.

"Pure and defiled religion before God and the Father is this: to visit orphans and widows in their trouble, and to keep oneself unspotted from the world." - James 1:27

 

EPISODE RESOURCES -

Foster Hope NY

https://www.fosterhopeny.org

hannah@fosterhopeny.org

Instagram - https://www.instagram.com/fosterhopeny/

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

 

 

 

 

 

132 - Silent No More - A Conversation with Miranda B.

132 - Silent No More - A Conversation with Miranda B.

May 11, 2022

FASD Hope is  a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 

May is Foster Care Awareness Month and the voices of those individuals who have been in Foster Care are so CRITICAL in our community. Episode 132 features Miranda B., an adult FASD self-advocate, who was also a youth in Foster Care in British Columbia, Canada. Miranda's journey and story is EXTREMELY important  in the conversation of Foster Care Awareness and Support. Miranda is now an adult living in British Columbia and she is a photographer and runs an online support group for adults with FASD. Through her online support group, she hopes to provide support and encouragement for other adults with FASD. Her goal is to educate and provide awareness of FASD and speaking out about the injustices that face so many youths in Foster Care.

 

EPISODE RESOURCES -

Miranda B. -

mandy-gcorp@hotmail.com

Miranda on Facebook - https://www.facebook.com/MandyGraffmations

Miranda on Instagram - 

https://www.instagram.com/mggraff22

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

130 - Digging Deeper in FASD - A Conversation with Ann Yurcek

130 - Digging Deeper in FASD - A Conversation with Ann Yurcek

May 3, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience. 

May is National Foster Care Month, a time to acknowledge and support children, youth, families and professionals in the foster care system.  FASD Hope is honored to have Ann Yurcek of Red Shoes Rock and Digging Deeper as the guest of Episode 130. 

Ann Yurcek is a writer, mentor, speaker, and advocate for professional, caregivers and individuals in the exceptional needs communities. She is a strong advocate for children with special needs in the foster care and adoption system. Ann and her husband Jim are the loving parents of twelve children, seven of twelve children have special needs. Their daughter, Becca, taught them how to make a difference for Mac, child number twelve. Mac is a medical marvel and Furry: The Little Penguin That Could is written in the hope of supporting inclusion for children living with trauma, physical, emotional and intellectual challenges and features them both "Rocking Their Red Shoes". 

Ann is the founder and prior administrator of Parenting FASD Kids and Parenting Children with FASD Digging Deeper Support Groups for caregivers and parents living with children who have brain and body challenges due to prenatal alcohol exposure. She shares and enlightens parents and caregivers with her incredible journey at her website - www.ParentingComplexChildren.com and she co-directs the International Red Shoes Rock Stop FASD campaign.

In 2006, Ann authored the Dove and Mom's Choice Gold Award Winning Memoir, "Tiny Titan: Journey of Hope". Her new children's books, "Furry: The Little Penguin That Could" and "Furry: The Little Penguin Who Cares". Ann believes if we embrace diversity in Kindergarten, we have the opportunity to lessen bullying and build understanding and acceptance for everyone and the concept of Emotional Support Partners for kids. Everyone matters!

In this heartfelt and inspirational conversation, Ann discusses: their family's journey, their family's FASD and Foster Care journeys, her decades-long legacy in the FASD community, the over 428+ comorbid medical conditions associated with FASD, her books, her strong faith and her words of encouragement and hope.

"Those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." - Isaiah 40:31

 

EPISODE RESOURCES -

Red Shoes Rock - https://redshoesrock.com/

Furry The Penguin- https://furrythepenguin.com/

Facebook - https://www.facebook.com/RedShoesRock

                  https://www.facebook.com/parentingcomplexchildren

Instagram - https://www.instagram.com/redshoesrock_fasdaware/?hl=en

Etsy Store -

https://www.etsy.com/shop/MacFurryRockRedShoes?ref=shop_sugg

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

 

129 - A Legacy in FASD and Law - A Conversation with Kay Kelly

129 - A Legacy in FASD and Law - A Conversation with Kay Kelly

April 28, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

FASD Hope is honored to welcome Kathryn "Kay" Kelly in Episode 129, titled "A Legacy in FASD and Law". Kathryn Kelly, called Kay by most who know her, came to the University of Washington after an extensive career in criminal justice. She worked for nine years as a probation officer for the state of California, and for twenty years as a federal probation officer. She was retrained as a mitigation specialist and served for three years as part of a team assembled by the Capital Habeas Unit of the Federal Public Defender in Los Angeles to represent inmates on Death Row seeking redress of their death penalty sentences.

In 2001, Kay joined the Fetal Alcohol and Drug Unit (FADU) at the University of Washington, working with Dr. Ann Streissguth. With a grant from the Robert Wood Johnson Foundation, she and Dr. Streissguth established the FASD Legal Issues Resource Center. In that role, Ms. Kelly has planned and/or participated in numerous trainings for judges, defense attorneys, prosecutors and other court professional throughout the United States, and in numerous foreign countries. Since 2013, she has organized a series of conferences about FASD and the law held in conjunction with the biennial UBC - Vancouver International Conference on FASD.

Ms. Kelly was instrumental in the organization of the first forensic FASD diagnostic team, FASDExperts, and in the passage of an American Bar Association Resolution on FASD in 2012.

Ms. Kelly is also a Research Coordinator for a National Institute of Alcohol Abuse and Alcoholism (NIAAA)-funded five year project: Fetal Alcohol Spectrum Disorders in Adults: Health and Neurobehavior.  Ms. Kelly is a Board member of the FASD United Affiliate - Washington.

In this ENLIGHTENING episode, Kay discusses the following: her work and contributions in the FASD community, her amazing work with Dr. Ann Streissguth / FASD Legal Resource Center, her current projects and initiatives....and words of experience, encouragement and hope for parents and caregivers.

EPISODE RESOURCES -

Kathyrn "Kay" Kelly - faslaw@uw.edu

Tel- 206-616-5408

https://adai.uw.edu/staff_members/kay-kelly/

University of Washington - FADU

https://www.washington.edu/research/research-centers/fetal-alcohol-and-drug-unit/

FASD Resolution - ABA

https://www.americanbar.org/groups/public_interest/child_law/resources/attorneys/fasd-resolution/

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

 

128 - The FASD Collaborative Project - A Conversation with Emily Rusnak

128 - The FASD Collaborative Project - A Conversation with Emily Rusnak

April 26, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 128 welcomes Emily Rusnak and highlights her amazing advocacy through MC FARES and The FASD Collaborative Project. Emily Rusnak, Ph.D., CCC-SLP is the founder and project coordinator for the FASD Collaborative Project, a cross-organization international initiative to increase high-quality training and support options for caregivers, self-advocates, and professionals in the FASD community. Dr. Rusnak is also the vice president for Michigan's FASD United affiliate and has served on the Executive Council for FASD United.

In this enlightening episode, Emily discusses the following topics: her professional background and her family's journey, MC FARES, The FASD Collaborative Project, upcoming events and words of encouragement and hope.

 

EPISODE RESOURCES - 

MC FARES -

https://www.mcfares.org/

Twitter - https://twitter.com/MCFARESNOFASMI

 

The FASD Collaborative Project - 

https://www.fasdcollaborative.com/

Facebook - https://www.facebook.com/FASDCollaborative

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

127 - Unseen Documentary - A Conversation with Amanda and Tom Dyer

127 - Unseen Documentary - A Conversation with Amanda and Tom Dyer

April 20, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over nineteen years of lived experience.

Episode 127 features Tom and Amanda Dyer, Creators / Directors / Producers, of the upcoming documentary "Unseen: How We're Failing Parent Caregivers and Why It Matters". Tom and Amanda share what inspired them to create this MUCH NEEDED documentary, what they learned in making the "Unseen Caregiver Documentary" and words of hope for parent caregivers.

"The Unseen Documentary film follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical health. It's a common story among parent caregivers: the isolation, uncertainty about the future, lack of options , and a never-ending daily to-do list means the role of caregiver overpowers nearly ever other facet of life. Video diaries from diverse caregivers featured in the film illustrate this universality, while interviews with mental health experts and policy / legal advocates provide a broader view on the societal impacts."

Objectives of the Unseen Documentary Film include:

-  Give an unfiltered glimpse into the lives of parent caregivers and their real challenges.

-  Shed light on how difficult it can be to get support and solutions.

-  Establish strategic partnerships to enable real change.

 

The Global Online Premiere of the "Unseen Caregiver Documentary" will be held May 20-26, 2022. See the below for links / more information.

EPISODE RESOURCES -

 

FASD HOPE -

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

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