FASD Hope
153 - Embrace Our Journey with Jeremy Elliott and William G.

153 - Embrace Our Journey with Jeremy Elliott and William G.

September 20, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

It's September- FASD Awareness Month! Episode 153 of FASD Hope jumps into the ring of AWESOME FASD Advocacy with Jeremy Elliott and William G. of "Embrace Our Journey".  Jeremy Elliott is a martial arts teacher, champion and owner of United Family Martial Arts in Niagara Falls, Ontario (Canada). He is also a Top 500 Pro Wrestler.  Jeremy created the "Embrace Our Journey" FASD Advocacy campaign with his teen godson, William G, an FASD self-advocate. Together, Jeremy and Will are champion FASD advocates!

In this MOTIVATIONAL episode, Jeremy and William discuss: the beginnings of "Embrace Our Journey", the MANY FASD Advocacy events they have for September and October, how martial arts and wrestling has made such a powerful impact (and support) in William's life, the benefits of finding a martial arts school that can be a good fit for students with FASD (or other brain based diagnoses) and their words of hope for listeners.

EPISODE RESOURCES -

United Family Martial Arts (Canada) - https://www.ufmaniagara.com/

Jeremy Elliott - ufmaniagarafalls1@gmail.com

Facebook - https://www.facebook.com/UFMANiagara

https://www.facebook.com/JeremyNickVickersElliott

Instagram - https://www.instagram.com/jeremyelliottnf/

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

152 - FASD, 504’s and IEP’s - A Lesson with Shannon Iacobacci

152 - FASD, 504’s and IEP’s - A Lesson with Shannon Iacobacci

September 13, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with more than twenty years of lived experience.

Episode 152 welcomes back two-time guest, Shannon Iacobacci of "Embracing the Brain". Shannon is a mom of multiple children with varying developmental disabilities, including Fetal Alcohol Spectrum Disorder (FASD). As an FASD specialist, Shannon helps families living with FASD. She also helps students with executive functioning struggles, attention, behaviors, memory, social & adaptive skills, and mental health needs. 

Shannon's in-depth experience includes being a FASD Specialist, FASD Public Speaker/Trainer for multiple organizations, school districts, Child and Family Services, foster family agencies, & universities, a Certified facilitator - FASCETS Neurobehavioral Model, 18 + years IEP experience.

In this RESOURCEFUL and HELPFUL episode, Shannon explores the following topics: her business / services through "Embracing the Brain", IEP / 504 basics, the differences in IEP's for students with FASD vs. other brain based diagnoses, top accommodations that are seen on 504s/IEPs of students with FASD, tips for parents / caregivers when going into 504 / IEP meetings and her words of hope and encouragement (especially for the new school year).

"Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit."

- Romans 15:13

 

Shannon's previous episodes on FASD Hope were -

Episode 5 -"FASD and Teens"

Episode 26 - Climbing Down Holiday Mountain"

 

EPISODE RESOURCES - 

Embracing the Brain website - www.EmbracingTheBrain.com 

Email - Shannon@EmbracingTheBrain.com 

Instagram - https://www.instagram.com/shannon.iacobacci/

LinkedIn - https://www.linkedin.com/in/shannon-iacobacci-92982016a/ 

Facebook - https://www.facebook.com/EmbracingTheBrain 

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

 

 

 

151 - FASD at 50 - A Conversation with Dr. Kenneth Lyons Jones and Andrea Torzon

151 - FASD at 50 - A Conversation with Dr. Kenneth Lyons Jones and Andrea Torzon

September 9, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through he lens of parent advocates with over twenty years of lived experience. 

Episode 151 is airing on September 9th - International FASD Awareness Day titled "FASD at 50" with Dr. Kenneth Lyons Jones and Andrea "Andy" Torzon, LMFT of the University of California San Diego School of Medicine's Institute for Fetal Alcohol Spectrum Disorders Discovery. This important episode highlights returning guest, Dr. Kenneth Lyons Jones, who is considered the leading expert in FASD and who was one of two doctors at the University of Washington, who first identified Fetal Alcohol Syndrome (FAS) in the United States in early 1973. Dr. Jones is joined by Andrea Torzon, LMFT, a family therapist who works with Dr. Jones at the UC San Diego's Institute for FASD Discovery.

As the 50 year anniversary of the first identification of FAS approaches, this special episode is titled "FASD at 50" and shares highlights from Dr. Jones' Keynote presentation "FASD at 50" from NOFASD Australia's "The FASD Forum '22 Virtual Conference". In addition to Dr. Jones' highlights from this important presentation, Andrea "Andy" Torzon shares her work and professional perspective of working with families at the UC San Diego Institute for FASD Discovery and through her nonprofit organization "Twinkle, Twinkle LIttle Farm".  Together, Dr. Jones and Andy discuss the following topics: the stigma that continues to surround FASD 50 years after the identification of FAS, the "4 Critical Issues" in understanding and moving forward in the FASD community, the importance of reframing wording and discussions to reduce stigma associated with FASD,  the importance of establishing FASD Centers of Excellence in each state and their words of hope and encouragement.

 

EPISODE RESOURCES -
Dr. Kenneth Lyons Jones -https://www.rchsd.org/doctors/kenneth-lyons-jones-md/
https://betterbeginnings.org/who-we-are/leadership/
https://betterbeginnings.org/who-we-are/leadership/dr-kenneth-lyons-jones-md/
https://medschool.ucsd.edu/som/pediatrics/Divisions/dysmorphology/about/Pages/Dysmorphology_Teratology_Division_Members.aspx
https://pediatrics.med.ubc.ca/2018/03/20/a-retrospective-look-at-43-years-of-fetal-alcohol-spectrum-disorder-fasd-how-did-we-get-here-from-where-we-started/

https://www.facebook.com/UCSDcbb/
https://twitter.com/ucsdcbb
https://www.instagram.com/ucsdcbb/

Andrea "Andy" Torzon -

https://betterbeginnings.org/what-we-do/patient-care/fetal-alcohol-spectrum-disorder-clinic/programs/

Twinkle, Twinkle Little Farm Nonprofit -

LinkedIn - https://www.linkedin.com/in/andrea-andy-torzon-576b2283/

Facebook - https://www.facebook.com/twinkletwinklelittlefarm

Instagram - https://www.instagram.com/twinkletwinklelittlefarm/

YouTube - https://www.youtube.com/channel/UCNPSUMYBTDDObZvdXhZ_mdQ

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

150 - Let’s Go! - Run FASD 2022 Virtual 5K Finale

150 - Let’s Go! - Run FASD 2022 Virtual 5K Finale

September 8, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

FASD Hope is HONORED to be a part of TEAM RUN FASD 2022, which is Coach Rebecca Tillou, Jenn Wisdahl, Susan Elsworth and Natalie Vecchione. Episode 150 is “Let’s Go”,  an update, important information & the official launch for this 2nd Annual Virtual 5K for FASD! The Run FASD Virtual 5K will be held September 9th - 25th, 2022. It's not too late to register, registration is open until September 14th, 2022. Listen to this final update of Run FASD 2022 Virtual 5K and learn how you can participate, promote and support this 2nd Annual Virtual 5K for FASD!

EPISODE RESOURCES -
Run FASD Virtual 5K website -
https://runfasd.org/
Instagram - https://www.instagram.com/runfasd/?hl=en
Facebook - https://www.facebook.com/groups/runfasd
FASD United - https://fasdunited.org/

FASD HOPE RESOURCES -FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

149 - MASS FAS - A Conversation with Kristen Eriksen and Laura Bedard

149 - MASS FAS - A Conversation with Kristen Eriksen and Laura Bedard

September 6, 2022

FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

September is FASD Awareness Month!  Episode 149 highlights Kristen Eriksen and Laura Bedard of MASS FAS, an FASD United Affiliate. Kristen and Laura are both moms of children with FASD and united in their advocacy in their leadership of MASS FAS. In this ENCOURAGING episode, Kristen and Laura share: how they became parent advocates (from their respective families' journeys), how MASS FAS has grown in the past year, what they have learned as FASD parent advocates, their advice for parents who want to take that leap into FASD parent advocacy, the many offerings of MASS FAS for Massachusetts (and beyond), their upcoming work for MASS FAS and their words of encouragement and hope.

 

EPISODE RESOURCES - 

MASS FAS website - https://www.massfas.org/

Facebook - https://www.facebook.com/massfetalalcoholsyndrome

Instagram - https://www.instagram.com/massfas1/

Twitter - https://twitter.com/massfas1

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

148 - All About FASD Special Edition - A Panel Discussion with Dr. Jerrod Brown

148 - All About FASD Special Edition - A Panel Discussion with Dr. Jerrod Brown

September 1, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

It's September, which is FASD Awareness Month!  Episode 148 welcomes back Dr. Jerrod Brown to continue our series within the series “All About FASD Special Edition- A Panel Discussion". This month, Jerrod will be answering a variety of questions / subtopics within FASD. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).

In this FASD RESOURCE AND INFORMATION PACKED episode, Jerrod answers questions from FASD podcasters around the world!

Our FASD Podcast Panelists include:
Kurt Lewis, Pregnancy and Alcohol, The Surprising Reality Podcast
Gilberto Spencer-Wired Differently - Rewire Your Brain Podcast
Robbie Seale, FASD Family Life Podcast
Sandra Flach - The Adoption and Foster Care Journey Podcast
Natalie Vecchione- FASD Hope Podcast

Episode 148 Resources -
Dr. Jerrod Brown - jerrod1234brown@live.com
American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com/
Facebook - https://www.facebook.com/AIAFStraining
Instagram - https://www.instagram.com/aiafsassoc/
Twitter - https://twitter.com/AIAFS2011
LinkedIn - https://www.linkedin.com/in/aiafs/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAABntPzUB2qCg_fmbOMKXQbRSlzI9pSfdRG4

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

147 - All About FASD - FASD and Bullying - Part 1 with Dr. Jerrod Brown

147 - All About FASD - FASD and Bullying - Part 1 with Dr. Jerrod Brown

August 30, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. 

Episode 147 is the second of a two part episode special in preparing for "Back to School / Back to Homeschool" - FASD and Bullying - Part 1 with regular guest, Dr. Jerrod Brown.  Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic  Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST). 

In this episode, Jerrod discusses the following topics: the basics of bullying, risk factors that cause individuals with FASD (and other brain based diagnoses) to be more susceptible to bullying, the protective factors, what to know when helping individuals with FASD who are being bullied, symptoms and traumatic effects of bullying, where to look for resources and words of encouragement and hope. Note - the second Bullying episode with Dr. Jerrod Brown will be aired in October.

Episode 146 Resources -

Dr. Jerrod Brown - jeffod1234brown@live.come

American Institute for the Advancement of Forensic Studies (AIAFA) - https://aiafs.com/

612-250-5432

Facebook - https://www.facebook.com/AIAFSAssoc

Twitter- https://twitter.com/aiafs2011

LinkedIn - https://www.linkedin.com/in/aiafs/

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

146 - All About FASD - FASD and Friendship Skills with Dr. Jerrod Brown

146 - All About FASD - FASD and Friendship Skills with Dr. Jerrod Brown

August 30, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. 

Episode 146 is the first of a two part episode special in preparing for "Back to School / Back to Homeschool" - FASD and Friendship Skills with regular guest, Dr. Jerrod Brown.  Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic  Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST). 

In this episode, Jerrod explores the following topics: the basics of friendship skills, what skills are required in making and maintaining friends, the risk factors that individuals with FASD (and other brain based diagnoses) have in not having healthy friendships, the protective factors for helping individuals with FASD make and maintain friendships, advice and words of encouragement and hope.

Episode 146 Resources -

Dr. Jerrod Brown - jeffod1234brown@live.come

American Institute for the Advancement of Forensic Studies (AIAFA) - https://aiafs.com/

612-250-5432

Facebook - https://www.facebook.com/AIAFSAssoc

Twitter- https://twitter.com/aiafs2011

LinkedIn - https://www.linkedin.com/in/aiafs/

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

 

145 - It’s OK to Be You: Living Well with FASD or Other Disabilities with Kenny LaJoy

145 - It’s OK to Be You: Living Well with FASD or Other Disabilities with Kenny LaJoy

August 23, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

Welcome to the official book launch of "It's OK to Be You - Living Well with FASD or Other Disabilities" by Kenny LaJoy!  Episode 145 celebrates new author, Kenny LaJoy and his new book, which is a valuable resource for ANYONE in the FASD community, neurodiversity community...and many more!

Episode 145 is the "story behind the book". Kenny shares: his adoption journey, his FASD journey, his journey in becoming an independently published author, his faith, his hopes for his new book and how "It's OK to Be You" is an affirmation and resource for those with FASD, their families / loved ones or anyone wanting to learn more through the lens of a FASD self-advocate.

EPISODE RESOURCES - 

"It's OK to Be You - Living Well with FASD or Other Disabilities" by Kenny LaJoy

Available now on Amazon

https://www.amazon.com/dp/B0B7QP8PFC/ref=cm_sw_em_r_mt_dp_3FZJ6DAVTV6JJF2YEFEH

Contact Kenny at itsoktobeyoubook@gmail.com

Blue Collar Homeschool - https://www.bluecollarhomeschool.com/

Buckaroos Slices and Scoops - https://www.buckaroosmontrose.com/

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

144 - Hope for the FASD Journey Community with Sandra Flach and Natalie Vecchione

144 - Hope for the FASD Journey Community with Sandra Flach and Natalie Vecchione

August 15, 2022

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.

Episode 144 is the celebration of an exciting announcement - "Hope for the FASD Journey Community" with Sandra Flach and Natalie Vecchione. Together, Sandra and Natalie have formed a faith-based, FASD parent and caregiver support group community. Through their combined decades of lived experience as moms (of now young adults) of those with FASD, their resources through their years podcasting experience and Sandra's nonprofit organization, Justice for Orphans.....Sandra and Natalie are creating the "Hope for the FASD Journey Community" to support families of those with FASD / Brain Based Diagnoses.

In Episode 144, Natalie and Sandra discuss: how their friendship has grown, Sandra provides an update about her FASCETS Facilitator Training, how God planted the seed in both Sandra and Natalie for creating the "Hope for the FASD Journey" Community and what is included in the "Hope on the FASD Journey" Community Membership.

The "Hope on the FASD Journey" Community will officially begin it's first support group meeting on Tuesday, September 20, 2022, however interested individuals / family members may sign up now for this membership community through the following link - 

https://www.justicefororphansny.org/hope-community

 

EPISODE RESOURCES - 

Hope for the FASD Journey Community: Membership & Information

https://www.justicefororphansny.org/hope-community

 

Justice for Orphans -

https://www.justicefororphansny.org/home

Sandra's Podcast - "The Adoption and Foster Care Journey" Podcast - available anywhere you find your podcasts.

https://www.justicefororphansny.org/podcast

 

FASD HOPE RESOURCES -

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!

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