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FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. The mission of FASD Hope is to bring awareness, information and inspiration to those whose lives have been touched by a Fetal Alcohol Spectrum Disorder. Each week, Podcast Host- Natalie Vecchione- will speak with a variety of guests about different topics related to FASD and other Brain Based Diagnoses.
Episodes
Tuesday Oct 18, 2022
159 - All About FASD - FASD and Bullying Part 2 With Dr. Jerrod Brown
Tuesday Oct 18, 2022
Tuesday Oct 18, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Returning to FASD Hope is regular guest and friend in FASD advocacy, Dr. Jerrod Brown in Episode 159 - "All About FASD - FASD and Bullying Part 2". Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).
In this second episode about FASD and Bullying, Jerrod further explores the following topics: why it's critical to have a good knowledge of FASD / bullying, the links between bullying and self-destructive actions, cyberbullying, how bullying erodes mental health in individuals with FASD (and why they are already susceptible with mental health diagnoses), the further implications of bullying to already existing trauma and attachment issues, where to look for resources and words of encouragement and hope.
EPISODE 159 RESOURCES -
Dr. Jerrod Brown - jerrod01234brown@live.com
American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com
Facebook - https://www.facebook.com/AIAFSAssoc
Twitter - https://twitter.com/AIAFS2011
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday Oct 11, 2022
158 - Breaking the Pipeline - A Conversation with Dr. Deanna Westedt
Tuesday Oct 11, 2022
Tuesday Oct 11, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 158 of FASD Hope explores a controversial topic: the School to Prison Pipeline (STPP). The STPP or SPP is the significantly increased tendency of students from disadvantaged backgrounds, students with brain-based diagnoses, developmental disabilities and BIPOC students to become involved in the juvenile justice system. In today's episode, discussing the STPP and it's implications for students with brain-based diagnoses (including FASD, Autism, ADHD, etc.) is Dr. Deanna Westedt.
Dr. Deanna Westedt received a doctorate in curriculum and instruction and spent 22 years in education. Currently, she homeschools and provides guidance for families, both homeschooled and traditionally schooled. She has a special passion for twice-exceptional students and providing learning that goes outside of a classroom box. Her insights into twice-exceptionality have been featured in publications and venues such as Psychology Today, Future First Education, and CABE. Dr. Westedt’s research was featured in AERA 2020. However, her best accomplishment is that of the growth her boys made during their time in homeschooling so far, where her ideas on how to accommodate their special combination of giftedness and learning disabilities paid off. She currently provides coaching and writing sessions, as well as specializes in early literacy that can be blended into any type of setting. Additionally, she provides parent sessions, diagnostics, and flexible differentiation training for homeschool/ educational organizations.
In this highly informative and thought-provoking episode, Dr. Westedt shares the following: her professional background, her family's journey, her passion for creating academic equity for all students, how she became aware of the STPP, how students with brain-based diagnoses (including FASD) become even more susceptible to getting involved in the STPP, addressing how the traditional cycle of discipline reinforces the STPP (especially for students with developmental disabilities & brain-based diagnoses), how a systemic shift is required to break this cycle, how to better support those students involved in the STPP / JJ systems and her words of hope for listeners.
"Trust in the LORD with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths." - Proverbs: 5-6
EPISODE RESOURCES -
Dr. Deanna Westedt - https://deannawestedt.com/
Facebook - https://www.facebook.com/drwestedt
Instagram - https://www.instagram.com/dr.deannawestedt/
LinkedIn - https://www.linkedin.com/in/deanna-westedt-ed-d-64a2741b1/
FASD Hope Resources -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
HOPE FOR THE FASD JOURNEY ONLINE COMMUNITY - Co-Lead By Natalie Vecchione and Sandra Flach -
Hope for the FASD Journey is a faith-based, membership support community for parents and caregivers of individuals prenatally exposed to alcohol and other substances. Led by Natalie Vecchione of the FASD Hope Podcast and Sandra Flach of the Adoption & Foster Care Journey Podcast— 2 moms living the FASD experience. With more than 20 years of adoptive parenting each, Natalie & Sandra offer abundant knowledge and resources to provide hope to families on this journey. “
TO LEARN MORE ABOUT THE “HOPE FOR THE FASD JOURNEY COMMUNITY” OR TO SIGN UP, VISIT THE BELOW LINK -
https://www.justicefororphansny.org/hope-community
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday Oct 04, 2022
157 - Bullied, Broken, Redeemed - A Conversation with Candice Dugger
Tuesday Oct 04, 2022
Tuesday Oct 04, 2022
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
October is National Bullying Prevention Month. Episode 157 welcomes back Candice Dugger (Season 1, Episode 39, Feb. 25, 2021) to highlight her CRITICAL work in bullying awareness / prevention / education through "Bullied, Broken, Redeemed". Candice is a nationally-recognized anti-bullying expert, author, speaker and trainer. Candice and her team at Bullied, Broken, Redeemed specialize in equipping leaders, parents and youth on all aspects of Gen-Z Bullying. Candice also is the co-founder of "Reimagine Education Conference", which specializes in helping families transition to homeschool. Finally, Candice is the founder of Kids Business Academy, an organization that comes alongside parents to teach the essentials of entrepreneurship.
In this INFORMATIONAL and INSPIRATIONAL episode, Candice explores the following: Candice's family's journey with bullying / starting BBR, statistics, facts about bullying & kids / teens with neurodiversity, myths about bullying, how bullying is a cultural epidemic, key points about bullying, how BBR and her other initiatives support and help heal children / teens who have been through bullying and her words of hope and inspiration for listeners.
"Therefore comfort each other and edify one another, just as you also are doing." - 1 Thessalonians 5:11
EPISODE RESOURCES -
Candice Dugger - https://candicedugger.com/index.html
Instagram - https://www.instagram.com/cedugger/
Bullied, Broken and Redeemed Facebook - https://www.facebook.com/bulliedbrokenredeemed
LinkedIn - https://www.linkedin.com/in/candice-dugger-1a606952/
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Friday Sep 30, 2022
156 - It’s Our Two Year Podversary! With Guest Host Jennifer Wisdahl
Friday Sep 30, 2022
Friday Sep 30, 2022
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
FASD Hope Podcast is celebrating it's 2 year anniversary ( aka "Podversary")! FASD Hope launched on October 1, 2020. We are airing this milestone episode (a day early) on Friday, September 30th - International Podcasting Day. FASD Hope is thrilled to be active and embraced in both the FASD and Podcasting Communities! Episode 156 is also a first for FASD Hope, in that our "Most Frequent Guest", Jennifer Wisdahl of FASD United is this episode's GUEST HOST. Jennifer and Natalie have a heart to heart conversation with much warmth, hope and joy!
EPISODE RESOURCES -
FASD United -
Jennifer Wisdahl of FASD United -
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday Sep 27, 2022
155 - Oshays Brain Domain - An Update with Maryelen and Paula McPhail
Tuesday Sep 27, 2022
Tuesday Sep 27, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
Episode 155 welcomes back the AMAZING mother / daughter team of Maryelen and Paula McPhail of Oshays Brain Domain (formerly Oshays FASD). Maryelen is a FASD parent advocate and Paula is an FASD Self-Advocate. Together, they are the leadership behind Oshays Brain Domain - a Social Enterprise based in Ayr, Scotland with a mission of supporting families / children with FASD. Since their previous episode (#66 - airdate July 13, 2021), Maryelen and Paula have wonderful updates about: their global expansion, supports, programs and FASD advocacy initiatives through Oshays Brain Domain!
EPISODE RESOURCES -
Oshays Brain Domain / FASD - https://www.oshaysfasd.org/
Facebook - https://www.facebook.com/oshaysbraindomain
Instagram - https://www.instagram.com/oshays_fasd/
Twitter - https://twitter.com/OshaysFASD
LinkedIn - https://www.linkedin.com/in/maryelen-mcphail-fasd-969663165/
Email - info@oshays.org
Phone - +44 (0) 01292 261094 (Scotland)
The FASD Article that Paula wrote / shared -
https://metro.co.uk/2022/09/09/my-mums-pregnancy-drinking-caused-me-lasting-damage-17307228/
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Friday Sep 23, 2022
154 - FASCETS Friday - FASD in Spouses with Suzanne Emery
Friday Sep 23, 2022
Friday Sep 23, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
September is FASD Awareness Month! FASD Hope is thrilled to welcome back previous guest (Episodes 89, 112) and FASCETS Facilitator, Suzanne Emery for FASCETS Friday! Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director.
Today's FASCETS Friday episode topic is "FASD in Spouses". Suzanne has experience working with couples where one of the spouses or partners has a Fetal Alcohol or Neurobehavioral Diagnosis. Given the prevalence of FASD and Other Brain Based Diagnoses, Suzanne shares how determining a suspected FASD or other Neurobehavioral Diagnosis is critical with couples who are encountering tension and unresolvable challenges in their relationships.
Suzanne also discusses the following topics: exploring FASD/NB as the root if there are difficulties in a marriage / relationship, how to know if a spouse were on the FASD spectrum, why seeking a diagnosis (or ruling out an FASD) would be critical in a marriage / relationship, what to do if you suspect your spouse has an FASD, support or training that can help and stories of hope.
NOTE - If you are interested in learning more about an online support group for spouses of those adults with FASD, email Suzanne at suzemery28@gmail.com
EPISODE RESOURCES-
FASCETS - https://fascets.org/
Facebook - https://www.facebook.com/FASCETS
Instagram - https://www.instagram.com/fascets_inc/
Twitter -https://twitter.com/FASCETS2
To learn more about the online workshop opportunities given by FASCETS, click on the below link for more information or to register.
https://fascets.org/workshops/
Note - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday Sep 20, 2022
153 - Embrace Our Journey with Jeremy Elliott and William G.
Tuesday Sep 20, 2022
Tuesday Sep 20, 2022
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
It's September- FASD Awareness Month! Episode 153 of FASD Hope jumps into the ring of AWESOME FASD Advocacy with Jeremy Elliott and William G. of "Embrace Our Journey". Jeremy Elliott is a martial arts teacher, champion and owner of United Family Martial Arts in Niagara Falls, Ontario (Canada). He is also a Top 500 Pro Wrestler. Jeremy created the "Embrace Our Journey" FASD Advocacy campaign with his teen godson, William G, an FASD self-advocate. Together, Jeremy and Will are champion FASD advocates!
In this MOTIVATIONAL episode, Jeremy and William discuss: the beginnings of "Embrace Our Journey", the MANY FASD Advocacy events they have for September and October, how martial arts and wrestling has made such a powerful impact (and support) in William's life, the benefits of finding a martial arts school that can be a good fit for students with FASD (or other brain based diagnoses) and their words of hope for listeners.
EPISODE RESOURCES -
United Family Martial Arts (Canada) - https://www.ufmaniagara.com/
Jeremy Elliott - ufmaniagarafalls1@gmail.com
Facebook - https://www.facebook.com/UFMANiagara
https://www.facebook.com/JeremyNickVickersElliott
Instagram - https://www.instagram.com/jeremyelliottnf/
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Tuesday Sep 13, 2022
152 - FASD, 504’s and IEP’s - A Lesson with Shannon Iacobacci
Tuesday Sep 13, 2022
Tuesday Sep 13, 2022
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with more than twenty years of lived experience.
Episode 152 welcomes back two-time guest, Shannon Iacobacci of "Embracing the Brain". Shannon is a mom of multiple children with varying developmental disabilities, including Fetal Alcohol Spectrum Disorder (FASD). As an FASD specialist, Shannon helps families living with FASD. She also helps students with executive functioning struggles, attention, behaviors, memory, social & adaptive skills, and mental health needs.
Shannon's in-depth experience includes being a FASD Specialist, FASD Public Speaker/Trainer for multiple organizations, school districts, Child and Family Services, foster family agencies, & universities, a Certified facilitator - FASCETS Neurobehavioral Model, 18 + years IEP experience.
In this RESOURCEFUL and HELPFUL episode, Shannon explores the following topics: her business / services through "Embracing the Brain", IEP / 504 basics, the differences in IEP's for students with FASD vs. other brain based diagnoses, top accommodations that are seen on 504s/IEPs of students with FASD, tips for parents / caregivers when going into 504 / IEP meetings and her words of hope and encouragement (especially for the new school year).
"Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit."
- Romans 15:13
Shannon's previous episodes on FASD Hope were -
Episode 5 -"FASD and Teens"
Episode 26 - Climbing Down Holiday Mountain"
EPISODE RESOURCES -
Embracing the Brain website - www.EmbracingTheBrain.com
Email - Shannon@EmbracingTheBrain.com
Instagram - https://www.instagram.com/shannon.iacobacci/
LinkedIn - https://www.linkedin.com/in/shannon-iacobacci-92982016a/
Facebook - https://www.facebook.com/EmbracingTheBrain
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Friday Sep 09, 2022
Friday Sep 09, 2022
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through he lens of parent advocates with over twenty years of lived experience.
Episode 151 is airing on September 9th - International FASD Awareness Day titled "FASD at 50" with Dr. Kenneth Lyons Jones and Andrea "Andy" Torzon, LMFT of the University of California San Diego School of Medicine's Institute for Fetal Alcohol Spectrum Disorders Discovery. This important episode highlights returning guest, Dr. Kenneth Lyons Jones, who is considered the leading expert in FASD and who was one of two doctors at the University of Washington, who first identified Fetal Alcohol Syndrome (FAS) in the United States in early 1973. Dr. Jones is joined by Andrea Torzon, LMFT, a family therapist who works with Dr. Jones at the UC San Diego's Institute for FASD Discovery.
As the 50 year anniversary of the first identification of FAS approaches, this special episode is titled "FASD at 50" and shares highlights from Dr. Jones' Keynote presentation "FASD at 50" from NOFASD Australia's "The FASD Forum '22 Virtual Conference". In addition to Dr. Jones' highlights from this important presentation, Andrea "Andy" Torzon shares her work and professional perspective of working with families at the UC San Diego Institute for FASD Discovery and through her nonprofit organization "Twinkle, Twinkle LIttle Farm". Together, Dr. Jones and Andy discuss the following topics: the stigma that continues to surround FASD 50 years after the identification of FAS, the "4 Critical Issues" in understanding and moving forward in the FASD community, the importance of reframing wording and discussions to reduce stigma associated with FASD, the importance of establishing FASD Centers of Excellence in each state and their words of hope and encouragement.
EPISODE RESOURCES -
Dr. Kenneth Lyons Jones -https://www.rchsd.org/doctors/kenneth-lyons-jones-md/
https://betterbeginnings.org/who-we-are/leadership/
https://betterbeginnings.org/who-we-are/leadership/dr-kenneth-lyons-jones-md/
https://medschool.ucsd.edu/som/pediatrics/Divisions/dysmorphology/about/Pages/Dysmorphology_Teratology_Division_Members.aspx
https://pediatrics.med.ubc.ca/2018/03/20/a-retrospective-look-at-43-years-of-fetal-alcohol-spectrum-disorder-fasd-how-did-we-get-here-from-where-we-started/
https://www.facebook.com/UCSDcbb/
https://twitter.com/ucsdcbb
https://www.instagram.com/ucsdcbb/
Andrea "Andy" Torzon -
Twinkle, Twinkle Little Farm Nonprofit -
LinkedIn - https://www.linkedin.com/in/andrea-andy-torzon-576b2283/
Facebook - https://www.facebook.com/twinkletwinklelittlefarm
Instagram - https://www.instagram.com/twinkletwinklelittlefarm/
YouTube - https://www.youtube.com/channel/UCNPSUMYBTDDObZvdXhZ_mdQ
FASD Hope -
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
Thursday Sep 08, 2022
150 - Let’s Go! - Run FASD 2022 Virtual 5K Finale
Thursday Sep 08, 2022
Thursday Sep 08, 2022
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.
FASD Hope is HONORED to be a part of TEAM RUN FASD 2022, which is Coach Rebecca Tillou, Jenn Wisdahl, Susan Elsworth and Natalie Vecchione. Episode 150 is “Let’s Go”, an update, important information & the official launch for this 2nd Annual Virtual 5K for FASD! The Run FASD Virtual 5K will be held September 9th - 25th, 2022. It's not too late to register, registration is open until September 14th, 2022. Listen to this final update of Run FASD 2022 Virtual 5K and learn how you can participate, promote and support this 2nd Annual Virtual 5K for FASD!
EPISODE RESOURCES -
Run FASD Virtual 5K website -
https://runfasd.org/
Instagram - https://www.instagram.com/runfasd/?hl=en
Facebook - https://www.facebook.com/groups/runfasd
FASD United - https://fasdunited.org/
FASD HOPE RESOURCES -FASD Hope -
https://www.fasdhope.com/
natalie@fasdhope.com
Instagram - https://www.instagram.com/fasdhope/
Facebook - https://www.facebook.com/fasdhope1
Twitter - https://twitter.com/fasdhope
LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/
Racket - @fasdhope
Clubhouse - @natalievecc
Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!