151 - FASD at 50 - A Conversation with Dr. Kenneth Lyons Jones and Andrea Torzon

FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through he lens of parent advocates with over twenty years of lived experience. 

Episode 151 is airing on September 9th - International FASD Awareness Day titled "FASD at 50" with Dr. Kenneth Lyons Jones and Andrea "Andy" Torzon, LMFT of the University of California San Diego School of Medicine's Institute for Fetal Alcohol Spectrum Disorders Discovery. This important episode highlights returning guest, Dr. Kenneth Lyons Jones, who is considered the leading expert in FASD and who was one of two doctors at the University of Washington, who first identified Fetal Alcohol Syndrome (FAS) in the United States in early 1973. Dr. Jones is joined by Andrea Torzon, LMFT, a family therapist who works with Dr. Jones at the UC San Diego's Institute for FASD Discovery.

As the 50 year anniversary of the first identification of FAS approaches, this special episode is titled "FASD at 50" and shares highlights from Dr. Jones' Keynote presentation "FASD at 50" from NOFASD Australia's "The FASD Forum '22 Virtual Conference". In addition to Dr. Jones' highlights from this important presentation, Andrea "Andy" Torzon shares her work and professional perspective of working with families at the UC San Diego Institute for FASD Discovery and through her nonprofit organization "Twinkle, Twinkle LIttle Farm".  Together, Dr. Jones and Andy discuss the following topics: the stigma that continues to surround FASD 50 years after the identification of FAS, the "4 Critical Issues" in understanding and moving forward in the FASD community, the importance of reframing wording and discussions to reduce stigma associated with FASD,  the importance of establishing FASD Centers of Excellence in each state and their words of hope and encouragement.

 

EPISODE RESOURCES -
Dr. Kenneth Lyons Jones -https://www.rchsd.org/doctors/kenneth-lyons-jones-md/
https://betterbeginnings.org/who-we-are/leadership/
https://betterbeginnings.org/who-we-are/leadership/dr-kenneth-lyons-jones-md/
https://medschool.ucsd.edu/som/pediatrics/Divisions/dysmorphology/about/Pages/Dysmorphology_Teratology_Division_Members.aspx
https://pediatrics.med.ubc.ca/2018/03/20/a-retrospective-look-at-43-years-of-fetal-alcohol-spectrum-disorder-fasd-how-did-we-get-here-from-where-we-started/

https://www.facebook.com/UCSDcbb/
https://twitter.com/ucsdcbb
https://www.instagram.com/ucsdcbb/

Andrea "Andy" Torzon -

https://betterbeginnings.org/what-we-do/patient-care/fetal-alcohol-spectrum-disorder-clinic/programs/

Twinkle, Twinkle Little Farm Nonprofit -

LinkedIn - https://www.linkedin.com/in/andrea-andy-torzon-576b2283/

Facebook - https://www.facebook.com/twinkletwinklelittlefarm

Instagram - https://www.instagram.com/twinkletwinklelittlefarm/

YouTube - https://www.youtube.com/channel/UCNPSUMYBTDDObZvdXhZ_mdQ

 

FASD Hope -

https://www.fasdhope.com/

natalie@fasdhope.com

Instagram - https://www.instagram.com/fasdhope/

Facebook - https://www.facebook.com/fasdhope1

Twitter - https://twitter.com/fasdhope

LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/

Racket - @fasdhope

Clubhouse - @natalievecc

Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!